AmaAmazing Little Hearts: Congenital heart disease support group - KYTX CBS 19 Tyler Longview News Weather Sports

Amazing Little Hearts: Congenital heart disease support group

Posted: Updated:
  • CBS19.tv Web ExclusivesMore>>

  • Web Exclusive: Company cancels class to nix Southern accents, y'all, after complaints

    Web Exclusive: Company cancels class to nix Southern accents, y'all, after complaints

    Wednesday, July 30 2014 12:00 PM EDT2014-07-30 16:00:17 GMT
    We live in the South, so some of us may have a Southern accent, but would you consider saying "goodbye" to "howdy, y'all"?
    The Oak Ridge National Laboratory in Tennessee was going to offer a speech class for its workers next month to do just that, until it got canceled.
    More >>
    We live in the South, so some of us may have a Southern accent, but would you consider saying "goodbye" to "howdy, y'all"?
    The Oak Ridge National Laboratory in Tennessee was going to offer a speech class for its workers next month to do just that, until it got canceled.
    More >>
  • Web Exclusive: Ultra HD TVs

    Web Exclusive: Ultra HD TVs

    (CNN) -Some people just have to have the latest in television technology. The newest TVs on the market- ultra-high definition TVs- or UHD TVs. They have higher screen resolution than current high def screens, and are also known as "4-K" sets. "More >>
    (CNN) -Some people just have to have the latest in television technology. The newest TVs on the market- ultra-high definition TVs- or UHD TVs. They have higher screen resolution than current high def screens, and are also known as "4-K" sets. "More >>
  • Web Exclusive: A product to help keep sharks away on sale

    Web Exclusive: A product to help keep sharks away on sale

    Monday, July 28 2014 9:40 AM EDT2014-07-28 13:40:46 GMT
    If you're headed on a beach vacation, there's a product you may be interested in to help keep sharks away.  The device is called a Shark Shield.  It is now being sold in Florida.More >>
    If you're headed on a beach vacation, there's a product you may be interested in to help keep sharks away.  The device is called a Shark Shield.  It is now being sold in Florida.More >>

TYLER (KYTX) - A Tyler family is using it's personal battle to help others.

Terence and Laura Thedford's son is one of hundreds of thousands in the United States born with congenital heart disease.

The family is now educating other local families dealing with the same disease.

2-year-old Thomas Thedford was born with only half of a working heart.

"The whole left side of his heart didn't form so he's going to have to have three open heart surgeries. He's had two already. His first one was at 4 days old or so, and the second was 6 months. He's got another one scheduled at three years old," his dad Terence said.

Terence and Laura said the process was nerve racking they felt isolated as they learned how to deal with their son's congenital heart disease. So they immediately looked for guidance in East Texas.

"We quickly found out it was only going to be Dallas referrals," Terence said.

So they formed Amazing Little Hearts - a local organization that joins about 15 families dealing with the same hardship, so they will never have to deal with CHD alone.

"When you get the diagnosis it's just devastating and what these people did is they gave me hope," said mother Salem Novak. She was the first to join the local group. At the time she was pregnant with her son, stark, now 7 months old.

"It has made the world of difference. It really has because you see these children and there's such quality of life, and hope, and there's no words for that," she said.

5-year-old CHD patient, Sydney McGlothlin's parents agree.

"When we found out about her, it was honestly like a nightmare," her mother Lindsay McGlothlin said.

She remembers the first time she saw another child older than Sydney, with CHD.

"I saw this kid running around. I was just like, wow. She's going to be ok. I just had that overwhelming sigh of everything is going to be okay," she said through tears.

The group of families turning crisis into hope, wants you to know. if you're in their boat, they can help.

To get involved, or just for questions, head to the group's Facebook page: www.facebook.com/amazinglittlehearts

Or if you want more information, click: www.congenitalsurgerycenter.com

 

Powered by WorldNow

CBS19, MYTX & KCEB
2211 ESE Loop 323
Tyler, TX 75701
Phone (903) 581-2211
Fax (903) 581-5769

Powered by WorldNow
All content © Copyright 2000 - 2014 WorldNow and KYTX. All Rights Reserved. Users of this site agree to the Terms of Service, Privacy Notice/Your California Privacy Rights, and Ad Choices.